My daughter urgently needs a treatment that costs $800,000. Without it, sadly, she won’t survive.

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My name is Ashley, I’m 34 years old, married to my husband Michael, my life partner, and together we live in Llano — a small town in Texas — where we raise our little girl, Emma, who is just 6 years old.

Emma is full of life. She loves playing pretend, coloring bright pictures, and her smile lights up every room. But behind that smile, our little girl is fighting one of the hardest battles a child can face.

When Emma was only 3 years old, we noticed a swelling on her face, just below her left eye. After many tests, we heard the words no parent should ever have to hear: Emma was diagnosed with Ewing’s Sarcoma, a rare and aggressive bone cancer.

Since then, she has gone through months of chemotherapy, countless nights in the hospital, fevers, hair loss… and yet she faced it all with a strength that left us speechless.

Emma had to undergo surgery to remove the tumor. The procedure went better than expected — the doctors were able to remove it, and Emma was discharged, finally able to come home. For a moment, we thought the worst was behind us, that she finally had a real chance at healing.

But just months later, we received the news we feared most: the tumor came back, even more aggressive, and this time it spread to Emma’s eye. Conventional chemotherapy no longer worked, and Emma had to go through a second surgery, where part of her face and her left eye were removed.

We were devastated — Emma’s face was left completely disfigured. And even after the second surgery and more chemotherapy, the cancer hasn’t stopped growing.

The doctors were very clear: the disease has become refractory. Emma’s cancer must be controlled immediately, or she won’t survive. Our only hope now is an advanced treatment called CAR-T Cell Therapy — where Emma’s own immune cells are re-engineered in a lab to fight her cancer.

This therapy has already saved the lives of many children with Ewing’s Sarcoma. That’s why it’s the only real chance left to save Emma’s life.

But the cost is devastating. Just the CAR-T manufacturing alone is about $500,000. With hospitalizations, ICU care, tests, and supportive medications, the total cost reaches $800,000. 💔😭

We turned to our health insurance, but they refused to cover it, claiming the costs are too high. We were outraged — how can they just abandon a child’s life like this?

We went to court to fight for coverage, but the insurance company appealed, arguing they don’t have the financial capacity to pay for such an expensive treatment.

Now we’re desperate and out of options. We don’t have $800,000 to cover it. And Emma can’t wait any longer. Without this treatment, she won’t make it.

We’re just an ordinary family. I work at a small local store, and Michael is a maintenance technician. Never in our lives did we imagine we’d be facing numbers like this.

All we want is to see our daughter grow up, play with her friends, go to school, and live the life every child deserves.

But for that, we need your help. 💚

A Emily Johnson,
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